It has been a couple of weeks since my surgery which removed my Port-a-cath and put in a PICC line. Outside of the initial mess that the surgery caused me, everything has gone fairly ok I guess. I was on a 24 hour drip for 2 weeks straight. Last Tuesday, I was officially taken off the drip and put on an oral antibiotic instead.
After 6 weeks, the infection finally burst out of my skin and my doctors finally took it seriously. They brought me in fairly quickly, stuck a needle in the site and drew out some of the substance in order to test it to see what it was. Surprise, an infection. The next day they were wanting to take out the entire port, not surprisingly. They wanted to remove the port before they even knew what it was that was wrong. That is how they operate. Continue reading
A couple weeks ago now, I went to Ohio to see my brother. I haven’t been to his place in nearly five years, so it was a pretty big event. When I got home, my roommate brought sickness with, and so did my mom. It took me a few days, but eventually the sickness did catch up with me and I ended up quite sick and lost three days of work. Continue reading
I have a port in my chest which helps me take medicine for my Hemophilia. I need to take medication at least and due to this frequency, my veins can’t take the constant use. Thus the port-a-cath. It is a catheter that goes into a major artery and remains under your skin in order to help protect you against infection. In order to access it, you must insert a needle into the center of the port and then you can give yourself medications. Continue reading
I need to start this post the way that all employees start posts when they are talking about a job they work in. I work for EDS which is contracted out by Wisconsin as well as many other states to handle Medicaid. My comments here are not representative of EDS, HP (who owns EDS), the state of Wisconsin or anyone else who is somehow affiliated with the health care industry. What I am is an American Citizen whom is disabled with Hemophilia. As such, my life is very much centered around health care, and getting it.
Lately I’ve been dealing with insurance, a lot. I decided to bite the bullet early in the year and allow commercial health insurance to take effect. I realize for the average American, this is not a big deal. Most people are eager to get commercial health insurance. However I, as a Hemophiliac, have gone through most of my adult life avoiding it like the plague. Why? Well, I have the most expensive disease currently in the world and regardless of what anyone else might say Medicare and Medicaid are far better insurance plans than any normal health insurance could give.
As if I don’t have enough health concerns already in my life, on Tuesday night I went into the Emergency with what I thought was a severe back spasm of some sort as it hurt worse than it had in years. I get there and they let me in immediately. It is amazing how fast you can get in if you don’t try to cover your pain and you are visibly having issues. At any rate, after all is said and done they figure out that I am passing a stone and they give me muscle relaxers and it immediately goes away. Tonight it is flaring up again and as they instructed I took Ibuprofin and sure enough it went away (though after an hour and a half). I am not enjoying this latest problem of mine.
Wednesday night I felt the beginnings of an internal bleed starting in my left elbow. I didn’t really have time to do anything about it at that point, so I decided I would give myself my factor Thursday after I got home from work. However, by the end of the work day on Thursday the pain in my elbow was so sharp that I wasn’t even able to give myself the medicine due to the lack of bend in my elbow. Therefor, I made a trip to the emergency room, the first such trip I’ve made in more than half a year. Continue reading
So it has been about a month and a half since my operation and I just wanted to share the status with it. It seems to have all gone over well. My shoulder area is not in pain anymore, and it seems to have healed nicely. Continue reading
I am currently writing this from the hospital where I had my surgery yesterday. The experience itself was more than a little nerve wracking, though honestly was better than it had been previously. This is largely because I woke up at 4am yesterday, and thus by the time the surgery was getting prepped, I was already naturally groggy which helped. Despite that, I was still getting the shakes before hand just from being nervous. It is a difficult thing to go under, and everything smells and tastes like crap now from the oxygen. Continue reading